January 2011

Pernicious anemia and hair loss

Submitted by HugoMinney on Sun, 01/30/2011 - 15:01

Janette talking to Grahame Morris MP Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with havingB12 and then having it taken away.

She has bravely agreed to be filmed without her usual wig,

What is Vitamin B12 deficiency?

Submitted by HugoMinney on Sun, 01/30/2011 - 10:42

Vitamin B12 (also known as cobalamin) is vital to all cells in the human body. On this web site you can explore the condition, the symptoms (and assess yourself or someone you care about), and the impact nationally, as well as finding out more about the B12 Patient Support Group. Please stay and explore. The B12 Patient Support Group presents 30 years of clinical practice by Horden (North East England, UK) Dr Joseph Chandy caring for, and helping, over 1,000 people who have benefited from Vitamin B12 replacement therapy.

Write to your MP - make B12 Awareness important to them

Submitted by HugoMinney on Thu, 01/27/2011 - 13:15

Fear Friend

You asked to receive copies of our Newsletter, and I hope you also enjoyed reading the pages on the B12 Deficiency Patient Support Group web site.

Could you help?

Please write to your MP (Member of the UK Parliament) to get them involved with an Early Day Motion (EDM), which highlights B12 Deficiency and Pernicious Anaemia/ Pernicious Anemia.

Jane and her husband describe symptoms of pernicious anaemia and B12 deficiency

Submitted by HugoMinney on Wed, 01/26/2011 - 08:37

The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.

BBC Documentary and Testimonials

Submitted by HugoMinney on Thu, 01/20/2011 - 11:13

We've been surprised how many people, and how many conditions, benefit from B12 replacement therapy. It isn't a wonder drug - it's a simple vitamin - but it affects all parts of the body and when you are lacking B12 (you have B12 deficiency) it can show up in many many different ways.

B12 deficiency - Frequently Asked Questions - page 2

Submitted by HugoMinney on Sun, 01/16/2011 - 15:57

Continuing Frequently Asked Questions:

Can I overdose on B12?
Are injections better than oral lozenges?
Can I stop treatment/ Should I stop once my blood B12 is up to a certain level?
Will I recover completely? Will all of my damaged cells regenerate?
If I am B12 deficient, will other people in my family also be B12 deficient?

B12 deficiency - Frequently Asked Questions

Submitted by HugoMinney on Sun, 01/16/2011 - 15:56

Below we've listed some of the questions that come up when people write to us. Please keep writing – we love to hear from you (notifications@b12d.org).

Perhaps it is inevitable that we get the same questions coming up on a regular basis. Don't let that stop you from writing in to ask for advice – but please read here to save time.

NOTE this list of questions is not complete, nor are the answers.

B12 deficiency - Frequently Asked QuestionsB12 deficiency - Frequently Asked Questions

Submitted by HugoMinney on Fri, 01/07/2011 - 23:52

Below we've listed some of the questions that come up when people write to us. Please keep writing – we love to hear from you (notifications@b12d.org).

Perhaps it is inevitable that we get the same questions coming up on a regular basis. Don't let that stop you from writing in to ask for advice – but please read here to save time.

NOTE this list of questions is not complete, nor are the answers.

Newsletter #1 Sally Pacholok & Dr Chandy

PDF of Newsletter The first edition of our Newsletter is out! On the front page we interview Dr Chandy and remember how the society started.

On page 2 we talk to Sally Pacholok about the second edition of her book and her work to bring B12 deficiency to everyone's awareness in North America and the world through her lectures and books.

Read more about Newsletter #1 Sally Pacholok & Dr Chandy

MEETING 7 April 10am - Horden Welfare Hall (2013)

Submitted by HugoMinney on Fri, 04/19/2013 - 16:00

Complete change of plan for this meeting - we're going to try having a morning Committee Meeting, and the emphasis will be on chatting ra

Dr Chandy & Margaret Harty publication on B12 deficiency

Submitted by HugoMinney on Fri, 04/19/2013 - 11:35

Dr Chandy at Shinwell Medical Centre Dr Chandy and Margaret Harty have published a new article in NIHS Research Bulletin, which argues that a proper protocol is needed both for diagnosing the condition and for treating it.

This is a published version of the presentation at the Pernicious Anaemia Society's Conference on March 31st 2012 entitled "A Protocol for B12 Diagnosis and Treatment by Primary Care Clinicians", which some may remember.

Beedholm-Ebsen PhD Thesis on B12 absorption into cells

Submitted by HugoMinney on Tue, 04/02/2013 - 11:52

Here's a fascinating description of how B12 gets absorbed into cells. Because it is a PhD Thesis, it lurches between being very easy to read, and a heap of impenetrable jargon, but also because it is a PhD Thesis, it explains the basics as well as the really esoteric stuff.

5. DNA Switching and B12

Submitted by HugoMinney on Tue, 04/02/2013 - 09:46

What causes cancer? Well, it depends who you ask. This tobacco, sunshine, genetics, pretty much anything. Do we even know how often a cell goes haywire and starts reproducing itself, and the body manages this naturally - supressing and removing the cell itself before any damage is done?

4) Removing Toxins

Submitted by HugoMinney on Sun, 03/10/2013 - 22:25

What is probably one of the major causes of B12 deficiency? Removing Toxins from the blood.

This is the most immediate thing that B12 does - it gets from the small intestine (ileum) into the blood stream, and it's in an active state. It is designed to attach to anything that may poison the body, wrap itself around that substance, and then excrete that substance in the urine - at the same time sacrificing itself.

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January 2011

Pernicious anemia and hair loss

What is Vitamin B12 deficiency?

Write to your MP - make B12 Awareness important to them

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Jane and her husband describe symptoms of pernicious anaemia and B12 deficiency

BBC Documentary and Testimonials

B12 deficiency - Frequently Asked Questions - page 2

B12 deficiency - Frequently Asked Questions

B12 deficiency - Frequently Asked QuestionsB12 deficiency - Frequently Asked Questions

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Newsletter #1 Sally Pacholok & Dr Chandy

MEETING 7 April 10am - Horden Welfare Hall (2013)

Dr Chandy & Margaret Harty publication on B12 deficiency

Beedholm-Ebsen PhD Thesis on B12 absorption into cells

5. DNA Switching and B12

4) Removing Toxins

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