Many people ask if they can join our forums. We don't have separate forums just for us, we recommend that you join one of the Facebook groups.
The best group to join is New Beginnings. This is a private Facebook Group, so you need to search for it and then apply to join. Unfortunately when we had public groups, people would join to shout about something and wouldn't shut up, so the forums have to be private so they have a way to remove an unruly member.
The forums DO NOT give medical advice. If you see someone giving medical advice, politely suggest that the forum is not the place for it. These web pages can help you by sharing the experience of others, and the forums are a place to chat and find people who are suffering like you.
The reason we don't have our own is that we don't want to spoil the party. if everyone in the country / world goes to one forum, then it's exciting and vibrant. If everyone forms their own forums, then there will be no-one to talk to. So join one of the existing forums and contribute, and make people happy
Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.