Our favourite readers will be delighted to hear that we have had a batch of 96 bottles from USA. This is the preferred form for may of you - a bottle of 10ml or 30ml with a rubber bung in the top. They are also more cost-effective than the Arnika stocks (please note, a 30ml bottle of 1mg/ml from USA is more expensive than 10*1ml ampoules - per dose the USA stocks are much cheaper).
the new supplier, also from Texas USA (the previous one still hasn't got their export license renewed), will only supply 5mg/ml in 10ml bottles because they say it is unstable. And the price has gone up.
|Item||Cost per bottle/pack||Postage cost||Amount for 1000mcg||cost per dose of 1000mcg B12|
|Germany stock - 10* 1ml ampoules 1mg/ml||£28||75p||1ml||£2.88|
|USA stock - 30ml of 1mg/ml||£25||£2.80||1ml||£0.93|
|Germany stock - 10* 1ml ampoules 5mg/ml||£45||75p||0.2ml||£0.91|
|USA stock - 10ml of 5mg/ml||£39||£2.80||0.2ml||£0.84|
96 came in, 96 went out. That was about half of the backlog. The new company has a production line dedicated just to us, they tell us that production is difficult because it's unstable (we ordered 100, and 4 didn't make it) so they can only manufacture 100 every 3 weeks. We are of course prioritising - our best and oldest first, people who have a recommendation from Dr Chandy, people who give a reason on the notes.
Unfortunately 3 months of Arnika supplies has drained our bank account - Trustees have had to dig into our own pockets in order to get the supplies you need. Please please dig deep and make monthly donations to help us to buy for the people wh really can't afford it. In the last month, Trustees have put in an extra £2,500 and we can't afford it either! You know what a difference it makes to you, think what a difference it makes to others.
we are no longer buying oral B12 to put into stock and send out. It's possible for you to find oral B12 although we know supplies are difficult, but it's impossible for most people to find B12 for injection, so we're focussing our attention on getting that in for stock.
Please don't put on lots of requests. Please don't try to ask for every type of B12, or use different names, to try to jump the queue and get more than one bottle. Putting it frankly, it's disappointing when we have so much difficulty getting stocks that we can't send more than one bottle per person and it's disappointing that some people try to jump the queue. Please do speak to Dr Chandy and clarify if you really do need it. Please help others.
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
Donna, like so many women, wants to live a normal life. Vitamin B12 could give her that chance.