New Process for putting in requests for B12
As you know, we get more requests for B12 (hydroxocobalamin and methylcobalamin) than we can afford to buy and send. The only funds we get to run the charity and buy B12 are from your donations, although we do apply for grants to upgrade the website and print stuff.
We’ve noticed that some of the requests come from complete strangers – no note, just one (or sometimes lots) of requests for every type of B12 for injections and tablets. Well it’s important that you record your symptoms, and it’s important that you consider what else may be the problem and which type of B12 is likely to do you some good. We also get “requests” which are actually lists of symptoms. At the moment Dr Chandy can’t read the B12 requests so this is not the best place to put that information.
So here are some proposed changes:
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
Just the way it works for humans, oral B12 can make a world of a difference for your pet. My old cat Smudge chases the young cat again, climbs ladders (and climbs down herself), and is generally as fit as she was many years ago.
Donna, like so many women, wants to live a normal life. Vitamin B12 could give her that chance.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.