This is a B12-union that has been established in Norway as a result of poor treatment and a lack of knowledge among many doctors concerning B12-deficiency.
The union was established in late March 2018. Our main goal is to raise awareness, educate those who have, or think they have B12 deficiency, to be a support group, and to follow science and new articles that are being published. That also means to ask questions regarding what is being claimed. We have already corrected physicians who misunderstood a new article and wanted to stop treatment for their patient.
We are legally registered with a Company reg.nr. and are running it as a non-profit company. Our website was published in November 2018, and the statistics shows that our members are using it a lot. More than 7000-10000 clicks per month.
You have to be a member to be able to log in to the website. But everyone can become a member with a small fee for the costs of the website.
The website is mainly in Norwegian, but most of the original articles are in English. We have some private stories from our members, and we have thoroughly described all B-vitamins and which symptoms that may appear if we lack some of them.
We are contacting authorities with questions, and we have had 2 articles in the media. Norway used to have only one supplier of cobalamin for injections, and the price was 10 times more than other European countries. We don’t know if our pointing finger at this case has helped, but after a lot of letters, telephones and contacts with media, Norway now has 2 suppliers, and the second supplier is cheaper! Now it is only 7 times the German prices!
We are looking forward to continue our work and to raise awareness to this important subject. https://www.b12-foreningen.no/
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.