Vitamin B12 is vital for the immune system. This means that many of the people who suffer, who come to hear Dr Chandy and speak to Dr Chandy, are at risk of weakened immune systems and of picking up forms of colds and flu that run around this time of year. A particularly dangerous virus is the Coronavirus, which leads to a collection of symptoms called COVID-19. It's worse than SARS (bird flu). It's worse than MERS. It's possibly as bad as the 1918 Spanish Flu.
We cannot risk getting people together. Therefore we're cancelling all meetings with immediate effect.
Hugo normally works in an office (the charity has no money to pay volunteers, and Hugo has to earn a living) and therefore can't run meetings. However we've all been isolated (still working), so Hugo will try to arrange on-line meetings where possible so people can still talk to each other and to Dr Chandy. The plan is to use Zoom, and to make the meetings available to everyone, whether you have a computer and can join us online and see the slides, or whether you need to phone up and join the call.
Details of the call will be sent in the monthly newsletter and put on Facebook. Please keep checking for details. Attendance could be much higher than our face-to-face meetings so please don't be offended if everyone has to be muted.
Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.
Just the way it works for humans, oral B12 can make a world of a difference for your pet. My old cat Smudge chases the young cat again, climbs ladders (and climbs down herself), and is generally as fit as she was many years ago.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.