Giving You Back YOUR Life

NICE Guidelines for B12d published 6 March 2024 - Guidelines and our response

After months (some would say years) of careful lobbying, NICE, the National Institute for Health and Clinical Excellence, has prepared and published now guidelines for the diagnosis and management of Vitamin B12 deficiency (B12d). 

NICE guideline [NG239] - 'Vitamin B12 deficiency in over 16s: diagnosis and management’ was published yesterday, Wednesday 6th March 2024

We contributed, both as B12d, and as a member of the B12-Alliance (a group of organisations involved with ensuring that B12 deficiency is recognised, diagnosed and treated).

The guidelines represent a big step forward, and the work of the NICE team and all those who contributed is to be commended.  Read our considered response to this in cluB-12’s B12-Alliance's responses:

cluB-12 President, Prof Martin Warren, featured in this piece for ITV News, the UK's largest commercial news organisation (hover over the image and press play)

Return to B12d Charity Support Group Blog

Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
Just the way it works for humans, oral B12 can make a world of a difference for your pet. My old cat Smudge chases the young cat again, climbs ladders (and climbs down herself), and is generally as fit as she was many years ago.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)
June describes her suffering when doctors didn't follow the standard protocol after any stomach or intestinal operation - to offer B12 replacement therapy
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.