Giving You Back YOUR Life

What does the Charity do? - Support Groups around the country

B12 deficiency Support Group (B12d) started in Horden, a colliery village near Peterlee in County Durham, North East of England.  We still meet on the second Tuesday of each month at 10:30 am, alternating between Peterlee and Horden Miners' Hall. More details on our EVENTS page

Bridgend (South Wales)

Pernicious Anaemia Society has its headquarters in Level 4, Brackla House, Brackla Street, BRIDGEND, CF31 1BZ, their website is http://www.pernicious-anaemia-society.org/index.php where they have a lively community.  Martyn Hooper is the chair.  They held their first meeting on 2 April 2016.

Surrey

One of the leading activists for Pernicious Anaemia Society, Carrie-Anne Carr, is based in Surrey and I think she still runs events.

Nottingham

The Nottingham group had to close due to the organiser being too fatigued

Belfast

Clare Mulholland has offered to set up a group in Belfast.  The facebook page can be found on https://www.facebook.com/BelfastB12deficiency/

 

Are you B12 Deficient? Use our diagnstic calculator to find your diagnosis and how we can help you
Charity Events - View our calendar of events and see what is coming up for B12d
Success Stories - Read success stories on patients of Dr Chandy and other B12 Patients

B12d Charity Support Group Blog

  • 04
    AUG

    What's in Dr Chandy's Book?

    The book distils 46 years of clinical practice as a GP ...

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  • 09
    JUL

    Books for Doctors Scheme

    Are you a doctor?  Would you like a copy of the bo...

    Read More

  • 21
    JUN

    B12 Foreningen Norway

    This is a B12-union that has been established in Norway...

    Read More

  • 07
    MAY

    Vitamin B12 deficiency in Clinical Practice

    At last - the book "Vitamin B12 deficiency in Clinical ...

    Read More

Frankie tells of how she suffered, the tests she had to endure until doctors worked out what was wrong, and what a difference it has made.
Dr Chandy was nominated for the North East Local Heroes award. The interviewer was at first surprised - people don't get awards for doing what they are paid to do - but she persisted.
Susan gets very tired, which isn't much fun especially as she has so much to do. Here she tells her story.
Julia found her eyesight going as her eyes refused to focus on the same things as each other. She's been for all sorts of tests and treatment, but now that she's on B12 replacement therapy she's starting to see an improvement.
Janette first appeared in the BBC InsideOut documentary in October 2006. Since then the NHS has forced her doctor to withdraw B12 replacement therapy on a number of occasions, and she tells of her struggles with having B12 and then having it taken away.
She has bravely agreed to be filmed without her usual wig, but her memory is playing up because it is so long since her last injection.
Donna, like so many women, wants to live a normal life. Vitamin B12 could give her that chance.
The Scottish Parliament discusses Pernicious Anaemia and vitamin B12 deficiency on Wednesday 7 March 2012.
This video is over 1 hour long and represents real political change - we are at last on our way.
New documentary out from Elissa Leonard in North America, featuring Sally Pacholok and many other internationally renowned experts.
The local MP (Grahame Morris MP for Easington - who was a BMS (BioMedical Scientist) in the labs at Sunderland Royal Infirmary) interviews people with B12 deficiency to hear their story (August 27 2010). Here Jane describes the symptoms, and how she can't wait for her next B12 injection (in fact, she knows that she needs injections every 2 weeks because she's keeping a diary of the symptoms). We're restricted how often the GP can give injections, which is why we want to raise awareness.
The definitive and original guide to B12 deficiency, Dr Chandy interviewed by Chris Jackson of UK BBC Inside Out Team broadcast 31 Oct 2008.
Dr Joseph Chandy explains symptoms and shows the restorative effect on one patient (other patients' families have asked that we edit out their stories unfortunately)